Pioneering pilot to break down taboos surrounding future care

26 February 2020

People in South Staffordshire are being urged to take part in a pioneering pilot to break down taboos about planning for their future care.

The ‘How I want to go’ campaign has been launched by the South Staffordshire End of Life Care Alliance to encourage people to record their wishes about the care they would like at the end of their life.

If they choose to share their views with a senior nurse they will also be able to contribute to a research project assessing the potential for the campaign and to help shape its future. 

The pilot is to encourage people to consider the things that might matter most to them towards the end of their life and capture them online, in one place.

The responses will also be part of a research project, looking at the challenges and benefits that people experience of making plans for end of life preferences. 

Anyone can log on to and record things that matter to them as part of the project.

Alliance spokesman and lead coach for the project, and also community engagement manager at St Giles Hospice, Ian Leech said: “We hope that the ‘How I want to go’ campaign will encourage people of any age to record their future wishes about the important things they want the people looking after them to know.

“The My Wishes care plan includes information about you as a person, from favourite foods and movies to the important people who should be involved in decisions about your health if you cannot speak for yourself.

“Anyone can log onto the site and complete the form and even print off a copy to file with their will, Lasting Power of Attorney or other important documents for the future.”

As part of the project, which is funded by NHS England, if participants agree, the care plans will be shared with a senior nurse at St Giles Hospice, an alliance member.

A nurse will review the information in all of the care plans to ensure no urgent action is required and to produce an anonymised report to help healthcare teams and voluntary organisations consider how to best record people’s wishes and what they might be.

Ian added: “This project will hopefully encourage people to start important conversations and make plans for the future, which can help prevent future crises and most importantly will make sure people receiving the care they want, rather than the care people think they want.

“This information is a vital part in helping improve end of life care locally.”

Pictured: Members of the My Wishes steering group (from left) James Parsonage, of Burton Albion Community Trust, Sarah Riches, of St Giles Hospice, Esther Bromley, of Support Staffordshire, James Norris, of the Digital Legacy Association and My Wishes (on screen), Ian Leech, Marianne Grant, of Compton Care and Gayle Routledge, of Child of Mine

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